Thousands Of Kids Are Born With Pre-Existing Conditions

by Keiko Zoll

On Monday night, late night host Jimmy Kimmel announced the birth of his second child, a son. The news was bittersweet though, Kimmel became emotional describing a congenital heart condition that nearly claimed his newborn son's life. Before ending his moving monologue, Kimmel took on the national health care debate, noting that before 2014, his son's heart condition would have been considered a pre-existing condition, preventing him from ever getting health insurance. Kimmel's monologue raised several good points — and questions — such as how many kids are born with pre-existing conditions? The answer is important, given that pre-existing conditions have long been at the crux of the country's health care debate.

Kimmel's son was born with pulmonary atresia, a congenital heart defect that affects approximately 1 out of every 10,000 babies born in the United States, according to the Centers for Disease Control and Prevention. The CDC also reports that congenital heart defects occur in approximately 1 percent of all U.S. births, or 40,000 births per year. Congenital heart disease can be — and has been — considered a pre-existing condition, and thanks to the Affordable Care Act, pre-existing conditions can no longer be used as a factor to deny health care coverage to a child. But CHD is just one medical issue that could be considered a pre-existing condition at birth, and there are dozens of other illnesses, diseases, and conditions that fall into the pre-existing condition category.

In December 2016, the Kaiser Family Foundation reported there were 52 million non-elderly Americans with pre-existing conditions. But what about children? For that we have to go back a few years, to a 2012 Families USA report. The Families USA report found there were nearly 5 million children ages 0 to 17 with pre-existing conditions, or 7.7 percent of all people with pre-existing conditions in 2012.

The Families USA data didn’t drill down further on childhood age groups, or pre-existing conditions at birth. For that, we have to again turn to the CDC. At its facts about birth defects page, the CDC estimates that 120,000 babies are affected by birth defects each year. Birth defects can include everything from CHD, to hearing loss, and cleft lip, to conditions such as Down Syndrome.

This is what makes Kimmel’s emotional plea about keeping health care accessible and affordable so important: It’s not just about one famous parent’s moving story. The American Health Care Act would be devastating for hundreds of thousands of parents whose babies are born with pre-existing conditions. A particularly alarming recent finding by the CDC noted that deaths related to birth defects were more common for babies whose births were covered by Medicare than births covered by private insurance. Given that the AHCA plans to gut Medicare, the implication for some of America’s youngest, poorest, and most vulnerable patients is literally a matter of life or death.

As Kimmel put it so succinctly on Monday, “If your baby is going to die and it doesn’t have to, it shouldn’t matter how much money you make.”