Hillary Savoie

Hillary Savoie is a writer, rare disease advocate, and mixer of oddball cocktails. Mother to Esmé, the rarest of the rare.

Hillary Savoie

Life

by Hillary Savoie

Panicking About Hygiene? For Medically Fragile Kids, This Is Everyday

Life

by Hillary Savoie

No, Screens Haven’t Destroyed A Generation — Let’s Look At The Facts

Life

by Hillary Savoie

My Daughter Has A Feeding Tube, & It Can Be Pretty Great

Life

by Hillary Savoie

When Her Kid Couldn't Just "Go Play," Her Story Went Viral — For Good Reason

Life

by Hillary Savoie

Being Able To Meet Santa Isn't About Needing A Wheelchair Ramp

Life

by Hillary Savoie

PTSD Helps Parents Keep Their Medically Fragile Children Alive — But At What Cost?

Life

by Hillary Savoie

"Esmé Would Stop Breathing, And I Was Calm"

Life

by Hillary Savoie

"We Don't Want To Talk About What's Uncomfortable, So We're Left Feeling Alone."

Life

by Hillary Savoie

"A Lot Can Happen In 10 Minutes When You Have A Medically Fragile Child"

Life

by Hillary Savoie

"I Had To Do Chest Compressions On My Own Child"

Life

by Hillary Savoie

"I Have Flashbacks Of Her Turning Purple"

Life

by Hillary Savoie

"During Seizures, You Cannot Do Anything For Them"

Life

by Hillary Savoie

These Dancers Shook Up All Our Ideas About What Kids With Special Needs Have To Offer

Life

by Hillary Savoie

Before You Ban Screen Time For Your Kid, Consider Mine

Life

by Hillary Savoie

Can Big Bird Help Our Kids Recover From Trauma?

Life

by Hillary Savoie

Are We Ready To Talk Honestly About Disability, Pro-Choice Politics, & That Abortion Ban?

Life

by Hillary Savoie

If You’re Expecting, You Should Know The Symptoms Of HELLP Syndrome

Life

by Hillary Savoie

Why I Threw Out My Daughter's Developmental Testing Reports

Life

by Hillary Savoie

Don't Know Any Young Moms With Special Needs Kids? They Probably Unfriended You

Life

by Hillary Savoie

Donald Trump Wants "Better" Health Care — But Not For My Child