Hillary Savoie

Hillary Savoie is a writer, rare disease advocate, and mixer of oddball cocktails. Mother to Esmé, the rarest of the rare.

Life

Panicking About Hygiene? For Medically Fragile Kids, This Is Everyday

Life

No, Screens Haven’t Destroyed A Generation — Let’s Look At The Facts

Life

My Daughter Has A Feeding Tube, & It Can Be Pretty Great

Life

When Her Kid Couldn't Just "Go Play," Her Story Went Viral — For Good Reason

Life

Being Able To Meet Santa Isn't About Needing A Wheelchair Ramp

Life

PTSD Helps Parents Keep Their Medically Fragile Children Alive — But At What Cost?

Life

"Esmé Would Stop Breathing, And I Was Calm"

Life

"We Don't Want To Talk About What's Uncomfortable, So We're Left Feeling Alone."

Life

"A Lot Can Happen In 10 Minutes When You Have A Medically Fragile Child"

Life

"I Had To Do Chest Compressions On My Own Child"

Life

"I Have Flashbacks Of Her Turning Purple"

Life

"During Seizures, You Cannot Do Anything For Them"

Life

These Dancers Shook Up All Our Ideas About What Kids With Special Needs Have To Offer

Life

Before You Ban Screen Time For Your Kid, Consider Mine

Life

Can Big Bird Help Our Kids Recover From Trauma?

Life

Are We Ready To Talk Honestly About Disability, Pro-Choice Politics, & That Abortion Ban?

Life

If You’re Expecting, You Should Know The Symptoms Of HELLP Syndrome

Life

Why I Threw Out My Daughter's Developmental Testing Reports

Life

Don't Know Any Young Moms With Special Needs Kids? They Probably Unfriended You

Life

Donald Trump Wants "Better" Health Care — But Not For My Child